Monthly Archives: August 2014

ALS / MND

As a kid, the only thing I knew about ALS (or as it’s called here, Motor Neurone Disease), was that my friend’s mum died of it.  He never spoke about it.  (I’m not even sure how old he was when she died).

When I got older, I found a book that belonged to my mum as a kid. It’s called “A Time to Love, A Time To Mourn”, by Paige Dixon.  (It’s also known as “May I Cross Your Golden River?”).

This book is about a young man who is going about his life; he meets a girl, they fall in love and start planning their life together.  And then he gets sick.  Eventually he’s diagnosed with ALS, and the book tells the story of a life cut short by ALS.

I sobbed myself to sleep many times reading that book.

I haven’t read it for close on 20 years, but I can still vividly remember the story.

So why am I writing this?

The whole point of the ALS Ice Bucket Challenge is to raise money AND awareness of ALS.  I don’t have any money to donate, I sure as hell am not dumping ice water over myself (hey, I’m just getting over the flu AND it’s winter here), so I thought I’d do my bit to raise awareness.

I find that I get a better understanding of something through fictional application.  I managed a (Christian) bookstore for 5 years and during that time I devoured more books than usual (and I’m a book worm).  I rapidly discovered that while reading a non-fiction book on say, forgiveness, was great and there would be things that I’d learn from that book, picking up a novel and reading a story where forgiveness was a central theme, where it was applied in “real (fake) life”, I’d UNDERSTAND what the non-fiction book was talking about.

So again….why am I writing this?

I want to recommend the book I mentioned above to anyone and everyone to read.  It’s not an easy book to track down. It was written in 1975, is not available on Google Books, or Amazon Kindle.  Amazon has a few second-hand copies around, but maybe your local library would be a better option.

PLEASE go out of your way to find this book and read it.  Give it to your friends and get them to read it.

And if you can, donate.  (as always, do your research before you donate!).

(originally posted over on my tumblr)

deep breath…

Last night I attend the Doctor Who World Tour at the amazing State Theatre in Sydney.

There were approximately 2000 very enthusiastic Whovians in attendance, fezzes and sonics everywhere!

(If someone was to ask me what a gathering of Whovians sounds like, it would be the buzz of a sonic, hands down).

The Q&A wasn’t live-streamed last night (to the frustration of some), but that was because the order of the night had been changed so that the Q&A was held after the viewing of Episode 1: Deep Breath.  To me that made perfect sense as it allowed discussion of the episode we’d all just watched.

And that’s about all I can say, because SPOILERS, SWEETIE 😉

One more thing – Peter Capaldi & Jenna Coleman were LOVELY.

And another thing – I’m 100% on board with Peter’s Doctor. It’s gonna be different, and it’s gonna be fantastic 🙂

(This post was originally posted over on my tumblrPhoto 12-08-2014 6 13 23 pm Photo 12-08-2014 6 35 44 pm Photo 12-08-2014 6 36 45 pm  Photo 12-08-2014 6 42 04 pmPhoto 12-08-2014 7 02 05 pmPhoto 12-08-2014 7 02 10 pmPhoto 12-08-2014 7 05 13 pmPhoto 12-08-2014 7 32 26 pm   )

thinking…

The-Thinker

I realised today that the way I react to criticism is different, depending on if it’s work-releated or me-related.

At work, I’m somehow able to separate my work from my identity as a person. So, if my boss picks me up on something at work, it’s all sweet. I make the required adjustments, and off I go on my merry way.

However, in the past 10 days, I have had two things said to me in criticism of me as a person. One person said I was mean. That actually confused and upset me. Firstly, because I don’t believe it to be true, and secondly, because this person now has “Paula is mean” as the frame through which she views me. (Side note: this is a bit of a weird situation in that this person thinks she knows me, but she really doesn’t know me at all).

I said above that I don’t believe I am mean. I can be if I need to (as can anyone), but I actually work hard to not be (or even appear) mean. As an introvert I know that sometimes I can come across as shy and abrupt, but I have spent a long time working on myself so that doesn’t happen as much as it once did.

The second thing happened today, where I was told that something I thought was hilarious was inappropriate. I’m still not sure why this has thrown me like it has – which is probably why I’m writing this now, instead of an overdue #OneWord365 update (which is in process….somewhere in my brain).

I don’t even think what I’m really pondering is what’s been said, but rather why it’s affecting me in the way it is (aah, circular thought patterns of introverts. FUN FUN FUN).

Perhaps the first instance bothered me because it’s directly connected to how I prefer to be perceived. But at the same time, that person isn’t really connected to me at all, so in the bigger picture, it doesn’t really carry much weight.

However, the second instance threw me a little more because it was from someone in my “inner circle”, and so their opinion of me carries much more weight.

Aah. It’s gonna be fun trying to get to sleep tonight.

xx